Hospitalization and RSV

Late Sunday night, Bells started throwing up again. I'm talking about projectile vomiting. I immediately freak out and head to the ER. At this point, she had pretty much been vomiting every day except one, since Tuesday. I'm really worried and decide to take her in. It takes FOREVER to get seen. Let me just state right now, I was not impressed with the hospital which by the way, is a children's hospital.

First they of course, triage Bells. She hasn't lost any weight and has gained back her previous weight lost. No dehydration so far, but she is pretty lethargic. After almost 3 hours we get called back to a room. Thank God no triage room! We see a doctor after an hour. He orders more xrays to compare the previous ones to and make sure she doesn't have a bowel obstruction. We go for xrays and are told again that by the time we get downstairs, they will have the results. We wait for two more hours and the doctor who said he would be back never came back. I went out to the little nurses station and he looked at me and goes "Oh man, what room are you in again?" I point to our room and he comes in about 30-45 minutes later. Apparently he had forgotten about us. Grrr....

He comes in and says all her tests and labs have been normal this week. He insists she has a virus and that he can't admit her until it's been 7 days of vomiting. Are you effin kidding me? No dude! I looked him right in the face and said "So you send me home and if she's still throwing up I come back and tomorrow and will be admitted?" He shakes his head yes and I tell him I don't think so. This dude actually tried to dissuade me from having her admitted. I admittedly got a bit Mama Bear on him. He saw I wasn't backing down so he had her admitted. Two more hours go by. At this point I have been up for over 24 hours straight.

We get into a room and wait for the nurses to come ask us questions. I had called my Mom during the waiting and she showed up. The nurses warned me that a lot of people were going to be asking me the same questions over and over again. I said ok and then it was off to get Bells hooked up to an IV. Nathan had arrived while I was answering questions so he went with us. At first a nurse told me he would be taking her to another room. I was relieved I wouldn't have to watch her get stuck with a needle multiple times AGAIN. Then just to be certain, I asked if we were able to go with her. We were able to and Nathan suggested I stay in her room and he would go. I told him no and that I would go. How could I not? She's my baby. If she's going to be in pain, I may as well be there to try and comfort her. It's my job as Mommy to do what needs doing no matter how unpleasant.

An entire team of nurses (5-6) were in the room. They tried 3 different times to get a good vein, but because her veins are so thin, they were unsuccessful. Finally they called in Linda. Linda was amazing. In one try she found a good vein and did everything very fast. One of the nurses was texting on his phone the whole time and that didn't make me happy. Nathan wasn't happy with him either. The way we see it, is if you have to call someone else in to help you with something, you ought to be observing and learning. Of course I cried the entire time because of the whole "They're hurting my baby" thing. They collect some blood for teting and then it's finally over. Finally after they got the IV in and I picked her up and she calmed right down. Her color also returned. Previously, she had been really pale and clammy.

The doctor comes in to talk to us and tells us he has scheduled a swallow study for today. He has also scheduled for tummy xrays (again) and chest xrays to be done. More nurses come in to ask questions. At this point, I am so exhausted that I fall asleep in the middle of it all. My Mom answered the rest of the questions since she had heard all the answers previously. If she didn't know an answer she would ask me and I would fall back to sleep. My mom was going to let me sleep through the swallow study, but I refused and went with her and Bells. Bells had still been drinking pedialyte. They have a machine that they sit her up in and up on a screen I can see her throat. They prepare several bottles with formula and pedialyte and different nipples. They also tested one of my Dr. Brown bottles with a y cut nipple. This nipple is used for the rice cereal. I tried to tell the tech that that was the wrong nipple and she continued on with the test. When she tested my bottle, pointed at the screen and told me Bells was swallowing a lot of air. NO SHIT! The nipple is too big and she is gulping down the formula (without the cereal) trying not to choke. Of course she is going to swallow air! *head desk* The swallow study showed that she swallows a lot of air. All xrays are normal.

Through all this we are feeding her one ounce of pedialyte at a time. We wait 15 minutes and try to give her another ounce. We are told not to give her any more than that since she is getting one ounce per hour through her IV. She continued to throw up about half an ounce out of two ounces. I slept most of the day waking only for tests. Mom took care of Bells and everything else while I rested.



Tuesday her pedi scheduled a pneumogram and an upper GI study. The respiratory people came in a little before 10 to get her set up. They put a tube through her nose that went into her tummy. She sneezed a lot and didn't cry at all. My grandmother came up and saw us. She took one look at Bells and started crying. I hugged her and assured her that she was fine. Hell, I even managed not to cry. They also had leads attatched to three different points on her body and something that measured activity on her leg. The test was explained and it was to be a 12 hour test. We were to feed her as normal. I asked a nurse if we should be feeding her pedialyte or formula for the test. No one could give me an answer so I stuck with the pedialyte. After a while on that, I switched to her formula. After throwing that up, back to pedialyte.

After she got hooked up, Nathan showed up. It was his day off and he had been running errands for me and picking up things I needed. My grandmother and mother convinced me to leave for a just a bit and get some lunch. My grandmother took me out to lunch and we ran into one of my aunts. We talked for a bit and I realized I needed clothes and a few other things. We swung by the house and I got everything I needed. We got back to the hospital in about an hour and a half. I was anxious so I didn't want to be away longer than 2 hours total. While I was gone a GI specialist came in and talked to Nathan. He told him that since Bells had had her Prevacid he couldn't conduct his study today. We would have to wait until Wednesday since no other tests/studies could be done while the pneumogram was being conducted and she had taken her Prevacid. At about 10pm the respiratory people came back and removed all wires, tubes, and leads. The only thing she was hooked up to was the IV. She slept very comfortably only waking to eat. I told the night nurse about her cough that she had developed and he told me it was just irritation from the pneumogram but checked her breathing and said everything was fine.

Wednesday we had orders not to feed her (npo) after 5:00am. They told us the upper GI study would be conducted anywhere from 6-8 am. At 9:30 they finally came and got us. Since she had last eaten at 3:30, I wanted her to get the study done so she could get on with the eating. She was plenty hungry by the time we got to the xray room. They had her lay down and they had a machine that went over her and displayed her tummy on a screen. They gave her formula mixed with Barium contrast again so that they could see what is going on with her. They fed her and then they would turn her on her side, then on her back. We watched her tummy and the food just stayed there for a quite a while. Some of it started to move towards her intestines and then all of a sudden it all refluxed! The radiologist was shocked at how much and how suddenly it happened. After the test was done, he informd me that he didn't see anything wrong other than her reflux which appeared to be severe. He told us the test results shouldn't be long.

We returned to the room and waited...and waited and waited. Finally about 2:30 pm a nurse that I didn't recognize came in. I asked him if he knew about the results. He said he didn't but would get on finding everyting out. He informed me he was filling in while our day nurse Sandra (the greatest nurse EVER) was at lunch. Sandra came in a little while later with our discharge papers. Before we left, I had her listen to the cough that Bella had. She said she heard a faint crackling and explained all my discharge instructions. I was to see her regular pedi on Friday and her GI doctor a week later. The Dx was the same as the Friday ER visit: Severe reflux. At least now I know there is nothing else wrong. I thanked Sandra and explained what a Godsend she was. We loaded up all of our stuff and left.

Friday I took Bella to her Pedi appointment. I explained everything and mentioned her nasty little cough. They tested her for RSV and it came back positive. Apparently, Nathan had a sore throat for the last 5 days and thought it was allergies because it didn't hurt and was just scratchy. She was given perscriptions for a steroid (millipred), a nebulizer (albuterol) and saline drops for her nose. I also got sick with a sore throat, cough and congestion. I figured I had a cold. I went and got checked out as well to get started with whatever needed doing ASAP.I went into urgent care and the doctor that I had seen previously on several occasions decided to put me on antibiotics. I told him the situation and he gave me a cough medicine and a congestion medicine. I asked him why antibiotics with a viral issue and he told me that this thing could go viral or bacterial. He told me with my history of bacterial infections, it's best not to take chances. Pneumonia and Bronchitis aren't my idea of fun.

Bella goes back to get checked again on Monday. The nebulizer is wonderful and she actually likes it. She gets really calm and falls alseep. Nathan will be going to the doctor on Tuesday since it's his day off. Hopefully we will all be better soon. Poor Bells, she just can't seem to catch a break. I won't be leaving the house for a couple of weeks other than for Dr. Appts. Sandra suggested we keep her in so she doesn't catch pneumonia. Thankfully Nathan's aunt is able to come over and watch her while I run errands.

Today I felt so crappy, I called my Mom over to watch her so I could rest. Mom spent the day here and I got to rest. After she left, I somehow managed to pull a muscle in my back. Not fun at all. I can't wait until this is all over and behind us. Looking forward to better days! :)